Explore the profound insights from those who’ve endured the journey, as we delve into stakeholders’ perspectives on enhancing end-of-life care for chronic obstructive pulmonary disease patients.
– by James
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‘People that suffer or have been through it know the answers’: stakeholders’ perspectives on improving healthcare systems for end-of-life care in chronic obstructive pulmonary disease.
Landers et al., BMC Health Serv Res 2023
DOI: 10.1186/s12913-023-10431-9
What’s New: This study engaged stakeholders directly in the design of healthcare services for end-of-life COPD care, identifying five key themes for improving care quality.
Importance: The research is significant as it positions individuals with end-of-life COPD and their support networks as experts, directly contributing to the development of healthcare services. This approach could lead to more patient-centered and integrated care.
Contribution to Literature: The study contributes to the current literature by providing a stakeholder-informed perspective on healthcare system improvements, which is particularly valuable for a condition with high mortality and complex care needs like COPD.
Summary: The study involved 74 participants across seven focus groups, including people with end-of-life COPD, their support, bereaved individuals, and health professionals. Using qualitative analysis informed by critical and Actor-Network theories, five themes were identified for improving healthcare quality: governance, system integration, resource design and development, standardization of processes, and communication. These insights are intended to guide the design of healthcare services and clinical quality improvement for end-of-life COPD care.